The Community for Technology Leaders
Cluster Computing and the Grid, IEEE International Symposium on (2009)
Shanghai, China
May 18, 2009 to May 21, 2009
ISBN: 978-0-7695-3622-4
pp: 496-501
ABSTRACT
Paediatric endocrinology is a medical specialty dealing with variations of physical growth and sexual development in childhood. Genetic anomalies that can cause disorders of sexual development in children are rare. Given this, sharing and collaboration on the small number of cases that occur is needed by clinical experts in the field. The EU-funded EuroDSD project (www.eurodsd.eu) is one such collaboration involving clinical centres and clinical and genetic experts across Europe. Through the establishment of a virtual research environment (VRE) supporting sharing of data and a variety of clinical and bioinformatics analysis tools, EuroDSD aims to provide a research infrastructure for research into disorders of sex development. Security, ethics and information governance are at the heart of this infrastructure. This paper describes the infrastructure that is being built and the inherent challenges in security, availability and dependability that must be overcome for the enterprise to succeed.
INDEX TERMS
Data-Grids, Data security, Virtual Research Environment, Paediatric Endocrinology
CITATION

F. Ahmed, R. Sinnott, J. Jiang, J. Watt and A. Stell, "Towards a Virtual Research Environment for Paediatric Endocrinology across Europe," Cluster Computing and the Grid, IEEE International Symposium on(CCGRID), Shanghai, China, 2009, pp. 496-501.
doi:10.1109/CCGRID.2009.68
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