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Knowledge Architectures for Patient Access to Breast-Cancer Information
January/February 1998 (vol. 13 no. 1)
pp. 26-31

Patients are playing an increasingly active role in their own health care. The Community Breast Health Project is a grassroots organization founded in the San Francisco Bay Area in 1993 as a clearinghouse for breast-cancer information and support. Newly diagnosed breast-cancer patients have urgent and formidable information needs. They must educate themselves about breast cancer in general, their specific type of breast cancer, the stage of their disease, and the available treatment options. This article documents our attempt to give CBHP's clients online access to information about breast cancer. It grew out of earlier work that aimed to give oncologists online access to multiple knowledge sources.

An architecture evolved as we adapted the oncologists' knowledge-based information system to better meet patient needs. The driving force behind this evolution was our growing understanding of what patients wanted to know and how they wanted to access that knowledge. In particular, we learned that while FAQs represent patient information needs in an efficient and focused way, they present particular challenges for the organization of knowledge-based information systems.

Citation:
Colleen Crangle, Robert Carlson, Lawrence Fagan, Mark Erlbaum, David Sherertz, Lauren Langford, "Knowledge Architectures for Patient Access to Breast-Cancer Information," IEEE Intelligent Systems, vol. 13, no. 1, pp. 26-31, Jan.-Feb. 1998, doi:10.1109/5254.653221
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